Following the diagnosis of their son, Will, who suffers with a debilitating muscle wasting disorder called Duchenne Muscular Dystrophy (DMD), the Taylor family, have channelled their frustration and determination to tirelessly fundraise for the charity, MDUK, and raise valuable funds to support research into the disease. This year, Sam and Sue Taylor, together with a Team of 17 other riders, embarked on the mammoth 380 mile bike challenge, linking the 4 DMD research centres spanning from London’s Great Ormond Street Hospital, to the MDUK Oxford Neuromuscular Centre, before heading north to Alder Hey Hospital in Liverpool and the ‘Centre for Life’ in Newcastle.
The Duchenne Research Relay Team were greeted in Oxford’s University Parks by Prof. Dame Kay Davies (CBE FRS, FMedSci), to ‘pass the baton’. Prof. Dame Kay Davies has dedicated her life’s-work to investigating and developing a much needed treatment for the disease. The Team also hand delivered a touching letter to the MDUK ONMC Consortium, describing their personal journey and sharing their son, Will’s, story. They went on to thank the Consortium for their ongoing research into the disease, which offers them vital hope and keeps them motivated.
The Team completed the course in just 3 days raising an enormous £100 000 for MDUK, and most definitely proving that ‘where there’s a Will, there’s a way’.